Use cases Patient journey research

Patient journey research with care, consent and context

Understand life with a condition, a treatment or a care pathway in patients' and carers' own words. Private video, voice and text diaries, consent in their language, and strict control over who sees what.

A woman writes in a notebook at her kitchen table with her phone beside a glass of water

Patient journey research explores what living with a health condition is really like: the first symptoms, diagnosis, treatment, daily routines and the moments that are hard. A diary over several weeks captures what a single interview misses, such as a bad morning, a missed dose or a conversation with a pharmacist. With Zolensa, patients and carers share these moments by video, voice note or text, in their own language, under consent and privacy settings the agency controls.

When to use patient journey research

  • Mapping a care pathway: from first symptoms to diagnosis, treatment and follow-up.
  • Living with a condition: routines, workarounds, emotions and support at home.
  • Treatment and device use: how people take a medicine or use a device in daily life, and what gets in the way.
  • Carers and families: what supporting someone takes, and what would help.
  • Health professionals: how doctors, nurses or pharmacists see the same journey, in a separate group.

How a study runs on Zolensa

  1. Set up consent carefully. Start from the standard consent wording or your own, add required and optional tick boxes, and publish it in every study language. Each signature is kept with the exact version the participant read.
  2. Offer gentle formats. Some people do not want to be on camera on a hard day. Offer a voice note or text as well as video, and make questions optional where it makes sense.
  3. Plan the journey. Tasks open day by day. A journey map question lets participants rate each step of their pathway, with a note on why.
  4. Keep the team small. Roles decide who sees what. Clients see participants by code only and cannot export.
  5. Stay in touch. Participants can write to the research team in the app, and you can reply or ask a follow-up about one entry.
  6. Analyse with evidence. AI suggests themes, and every quote is checked word for word against what the participant said, with a link to the moment.

Zolensa features that help

  • Consent in eight languages. Participants read and sign before any task. You see who signed which version and when.
  • Data kept to a minimum. Photos lose their location data. Participants are shown by code, and contact details are visible only to the team running the study.
  • Retention you set. Each study has a retention period. Participants can stop at any time and ask for deletion from the app.
  • Private files. Recordings sit in private storage and play through links that expire after a few hours.
  • Voice notes and transcripts. Talking can be easier than typing or filming. Voice notes are transcribed and translated.
  • Audit trail. Sign-ins, exports, downloads, consent and deletions are logged.

Plan for these

  • Ethics and rules come first. Health research may need an ethics review, and pharmaceutical projects may need adverse event reporting. Agree the process with your client before fieldwork, and say it in the consent form.
  • Explain what not to share. Ask people not to film medical records, other patients or anyone who has not agreed.
  • Design for tiredness. Short tasks, flexible windows and the option to skip a day respect people's health.
  • Use codes in reports. Clients see codes, not names. Keep it that way in highlight reels and quotes.
  • Plan the end. Thank people, tell them how long their data is kept, and delete it when the retention period ends.

Frequently asked questions

What is a patient journey?

A patient journey is the full experience of a person with a health condition, from the first signs through diagnosis, treatment and living with it. It includes contact with health services, but also the time at home, at work and with family in between.

Is patient research on Zolensa GDPR compliant?

Zolensa is built so agencies can meet their duties under the GDPR, the UK GDPR and India's DPDP Act: consent in the participant's language, minimal data, strict access and deletion when the project ends. The agency is the controller and Zolensa is its processor under a Data Processing Agreement. Health data needs extra care, so check your legal basis and any ethics approval for each project.

Can patients take part without showing their face?

Yes. Offer voice notes and text, or ask for videos of objects and places rather than faces. You decide which answer types each question accepts.

Can carers and health professionals take part in the same study?

Yes. Put them in separate participant groups. Each group gets the tasks that fit it, and you can compare the answers later.

Who can see patients' answers?

Only the people you give access. Owners see the whole workspace, and researchers and moderators see the studies they are on. Clients see responses and highlights of their studies with participants shown by code only, and they cannot export.

Run your next study on Zolensa

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